Okay friends – big week ahead. Hopefully I will FINALLY get some answers! If you need me, you can find me at UT Southwestern donating all of my blood.
To recap: a few weeks back, I had extensive blood tests done and came back with a trifecta of doom. Highest inflammation levels ever (despite my extensive lifestyle changes), lowest platelet count ever and a positive test for ANA. The last one, at least, means that my body is attacking itself. That can lead to all kinds of sucky autoimmune diseases like lupus or polymyositis.
I’ve been trying not to worry until I had something concrete to worry about, but while my head has remained relatively cool, my body has been unimpressed. My anxiety has been sky high, making my stomach a train wreck (not helping my unrelated vomiting problem, sorry for the TMI) and I’ve had a bit of bitchery too. Sorry, friends and family. While it’s better that I couldn’t drink myself silly on Collin’s sangria at Joey’s 40th birthday, I certainly would have been more fun with a couple of glasses 🙂 (Great catching up with everyone, though!! Love you guys!)
Plus, I got to jump into a pool on Saturday! YES! At an awesome new friend’s house to boot. Maybe that extra boost of vitamin D can help kick all the nasties away.
As usual, I digress. Back to blood – that’s my Tuesday trip to UTSW. I’ll meet my hematologist and probably get sent for more tests. I’m truthfully hoping for some answers, though, because I want to find out why everything in my blood is so jacked up. We thought food allergies/intolerances were causing the inflammatory reactions, and they may well be, but it could be other stuff too. I have no illusions that gluten will be a regular player in my life ever again, but I’m still irritated that cutting it out of my diet didn’t fix everything. And it’s a catch 22, because both my regular doctor and gastroenterologist want to retest me for Celiac, which means I need to put guten back into my system, which means I’m going to want to die. That’s going to feel wretched after so long without.
Part two comes on Thursday as a follow up to my gastroenterologist appointment. First up, an ultrasound for my buddha belly! Then I get to eat some radioactive scrambled eggs and have my stomach activity studied. The working theory is that it isn’t processing food properly and somehow that’s triggering me to throw up all the time. I’ve said a million times that I’m only overweight because my body hangs on to dinner and processes calories twice. Maybe I’m on to something!
Or maybe I should just come to terms with my fashion degree, even though it’s a Bachelor of Science, and admit I know nothing medical. I only enjoyed science class when it was earth science and geology because I could daydream those rocks would turn into gemstones which would turn into jewelry.
So that’s where we are. Mom drove down from Missouri today so she can go with me. I’m in excellent hands, because ain’t nobody better than my momma. Work knows I’ll be out for two days this week and I’m full of well wishes. Part of me thinks I’m over-reacting, but the rest of me is beating myself up for not doing something about all of this earlier. I’ve known about my elevated inflammation levels for two years now but whine whine whine it’s too haaaaaaard. Bah. The low platelet count is relatively new, though, and the ANA as well, so I’ll try not to be too hard on myself.
All I want is to feel good and to be healthy. Seems like it isn’t too much to ask 🙂
I’m sure I’ll blog all week about my experiences. It definitely makes me feel better to share. Trouble shared is trouble halved, right?